Transferring

Transferring is a huge part of my daily routine that seems to really interest people. After I put up my shaving video I was getting Facebook messages, YouTube comments and even emails sent to me asking for a “How I Transfer” video. Because I feel like everyone has their own way of transferring, I thought showing my way could possibly give people some ideas or tips. My transfers have come a long way since I first started. What now takes me 10 seconds used to take a few minutes at least.The best exercise to practice for transferring are stomach exercises, because you need to be as stable as possible when transferring, and working your core will increase your stability. I did the three most basic transfers at home, so if there’s any others you’d like to see in addition to these, let me know in the comments!

Hope you enjoy the video ūüôā

 

 

A Time for Change

When I returned home from the hospital I remember looking in the mirror and just being in utter shock. I looked so frail and broken. I hadn’t taken a real shower in almost two weeks, my skin was a weird yellow color from the iodine, the bags under my eyes matched the hallows of my cheekbones that now protruded from my face, and most importantly the mouth that once never stopped smiling was now straight and pursed. I was damaged goods. All 5’11” of me had dropped down to almost 80 pounds while being hospitalized, which is¬†nearly¬†half of what I weighed four years prior. ¬†While in the hospital they learned¬†that I suffer from gastroparesis, a stomach disease bought on by my spinal cord injury. Basically, my¬†stomach takes much longer to digest food, so naturally it will require smaller amounts of food at a time so my digestive system doesn’t get overworked. This disease will be life-long and it is something I struggle with every day. Eating used to be my favorite thing to do. Forget hobbies, eating was my only pass time. You mix Greek and Polish and what do you get? An eater. The doctors¬†were relentless when it came to advising me to gain weight. It’s extremely difficult to put on weight due to my condition, though. With gastroparesis you’re not supposed to eat a lot, if any, greasy or fatty foods, because they take a lot longer to digest and are harder on your stomach. I recall one doctor saying “go home and just eat a bunch of cheeseburgers and junk food”. I just looked at her like the fool she was. I was just diagnosed with gastroparesis and she’s recommending the absolute worst diet for someone with the disease. At Northwestern, nonetheless. Needless to say, I didn’t take her advice. Instead, I started eating a lot healthier, which made my stomach very happy. I knew this ¬†wouldn’t help put weight back on fast, but being skinny is better than having a flare-up and winding up in the ER. Slowly my body started becoming healthier and I managed to put a little more meat on my bones. My new body was just another thing I needed to learn to love.

One day my mom sat down with me and asked what my vision for the next couple of years looked like. This took me by surprise, but the first two things that came to mind were school and living in the city. Living in the city would be easier in my mind because you don’t need a car, there’s basically anything you need right outside your front door and getting around alone seemed to be much easier for a wheelchair bound person. The suburbs were not ideal for my situation. By now my stepdad had moved out and cut ties and my brother moved back home. The divorce was back on and our house was going up for sale. It was a time for change, for everyone. Things at home were going better than they had in years, raising all of our spirits. My mom¬†knew how badly I was craving independence, and she saw my hidden potential. Her confidence in me was undeniably reassuring. Yes, there were a lot of things that could go wrong, but I couldn’t let the fear of the unknown stop me from achieving my goals and living my life.¬†Moving out on my own was something that excited me more than it frightened me.

Over the course of the next few months my mom and I were on the hunt for the most handicap accessible building we could find. I needed an elevator, hardwood floors, a big enough bathroom, ect. I was shocked when I saw how little housing options they had for the disabled, especially in such a huge city! Granted, I can adapt to pretty much anything. How the hell do handicap people who live in boo-foo survive?¬†In the end, we managed to nab the perfect spot! It was so beautiful and I couldn’t believe this would be my new home. A few months later I was living in my new apartment feeling more free¬†than ever. It was about a five minute walk..*cough*.. I mean roll, down to the beach and all the parks. There were shops, restaurants, farmer’s markets, bars, museums, street parties and so much more for me to enjoy! When I was living at home I was confined to my bedroom in the basement because our house had more stairs than Swallow Cliff! During the two years I lived at my parents I was bound to my bedroom, the garage and a tiny living space we remodeled into a small kitchen area downstairs. Now, I had the entire city of Chicago at my fingertips and I couldn’t be happier. Everyone could tell the difference in my spirits. My mom would say, “boy.. nothing seems to bother you anymore, you’re always happy”. I suppose that’s what a little independence can do for a gal.

Living on my own came with a whole new set of challenges, but I was ready for them. Even though house chores that used to take me only five minutes or so now took about an hour, I was so elated to be able to do them I didn’t mind. Little things like learning how to open different doors to more complex situations like doing laundry all needed to be mastered. You literally have to re-learn everything you were ever taught, and that takes a lot of time. Something that used to take little to no effort now is a chore that takes a considerable amount of time and effort. Doing dishes sitting down while trying to reach over the counter is another big pain in my ass, but I just think back to the days when I couldn’t even wash my own hands and this gives me a nice little reality check. So, next time you don’t feel like doing simple tasks, imagine doing them sitting down with only about 5% hand function and maybe that will put a fire under your ass. I’ve accepted that my life will come with more obstacles than others, but¬†in the end, they will only make me a stronger person. The struggles I’ve encountered while living solo have made me more independent, self-reliant and strong-willed. All of the good in my life definitely outweighs the bad, and I make a great effort to thank God every day for all the blessings in my life.

About a month or so after moving into my new place I met this girl on the rooftop. When people ask why I’m in a wheelchair my response will vary depending on the manner in which they asked me. This girl after a few minutes of talking with me asked if I had stolen the scooter I was riding (I ride a scooter on the streets because it’s much easier). I don’t think I’ve ever laughed harder in my life. Stole a wheelchair? Is this what everyone who saw me in the electric scooter thought? I didn’t know if she was serious… ¬†I would have to be a real scumbag to steal somebody’s scooter! I laughed for a good minute, then proceeded to tell her that I did infact need it. She felt terrible, but after I told her that was the best way anyones ever asked me that, her embarrassment subsided. How could I take offense to something so hilarious?¬†As months passed we eventually became great friends. I finally made my first good friend after becoming a glider! And she finally made her first wheelchair friend! Making this new friend made me come to the realization that people would still accept me into their lives even though I’m disabled.

Pretty soon I had a group of friends (some new, some old) that all got along and treated me as an equal. This is what I wanted; to start a new life in a new city with new people. I needed change more than ever, and it happened! Life is going fabulously; moving to the city on my own was one of the best decisions of my life. It isn’t always easy, but with each challenge comes a lesson. I give my mom an endless amount of gratitude, because if it weren’t for her I would have never experienced these amazing life changes. Anything from financial support to coming over after work to help clean my tub, she’s there no matter what. I can’t imagine what it was like for my family when my accident happened, but we’ve all pulled through and came out much stronger people.

 

 

A little place I like to call home…

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Blessings in Disguise

For those of you who know my story and have previously followed my blog, welcome back! For those of you who aren’t familiar, thank you for stumbling upon me (in blog form) and I hope you find some inspiration or at least learn a little something from my shared experiences!

PSA: There will be profanity in this blog, so if you’re not a fan of¬†an¬†occasional curse word¬†or three,¬†this might not¬†be for you.

My ultimate goal in recreating my blog is to be a little more candid with my readers. Also, and more importantly, I want to inspire others in similar situations to mine to become more independent and share some tips on how I survive in the big, rough city of Chicago on my own! I will share everything from my morning routine to what the nightlife is like for us gliders, how I get all glammed up, making new friends, traveling with a SCI and so much more! Before I get into all the fun stuff, I must first explain how I got to where I am today. It was a very bumpy road but it led to great things!

While I was writing my old blog, although many would say it was pretty raw, I was going through an extreme amount of personal obstacles that were hindering my mental recovery immensely, and I was hiding it from everyone. These hardships made it impossible for me to be motivated myself, let alone motivate others with my words. I never let my readers recognize there were any truly deep problems going on, besides the fact that I suffered a spinal cord injury. I know there are hundreds of thousands of other people suffering from spinal cord injuries, in fact there are almost 370,000 in the U.S. alone, who would benefit from me sharing my stories and experiences.

When someone goes through a traumatic injury it affects their entire support system. Your parents, siblings and friends are going to be severely distressed and overwhelmed. My situation, like most, was pretty uniquely devastating for everyone involved. But I want people to see the silver lining in all the suffering and extract the blessings in disguise. My last blog was cut short due to the personal difficulties I was facing. Now, over a year later, I’m finally ready to share this with my following.

About a year and a half ago I had gone from being told I would never feed myself again to walking with a walker. I was beating every odd. The doctors and surgeons who had told my parents I would never be an independent young woman were dumbfounded by the progress and strides I was making, and so quickly. Walking again was my main focus and goal in life. It’s practically all I ever thought about. All the anger and frustration I had built up inside of me was taken out in the gym during physical therapy. I was working with some of the best therapists and trainers in Chicago and boy was it paying off! But even though I was making all this progress and supposedly inspiring so many people, I was rapidly falling into a dangerously deep depression.

A month before my life altering accident my mother asked my step-father for a divorce. A security deposit was put down on a lovely 3-flat in the city. My mom, brother and I were all set to separate ourselves from the family that had been built for over 10 years. And then BOOM… I break my neck and become paralyzed. I was under my stepdad’s insurance at the time, so the divorce was temporarily put on hold while I recovered. This created a huge divide in my support system, not to mention a toxic environment for my grieving family. The negative energy in our home made it unbearable at times. It was going on 2 years of being bedridden unless someone helped me into my wheelchair. So, whenever there was an argument or screaming match going on in the house I was forced to lay there and endure it. The only person I blamed for this hell-hole was myself.¬†I’m the reason they had to stay together, I’m the reason they’re struggling so bad with money, I’m the reason my family is dealing with depression.¬†These were the thoughts that haunted my mind for years. I went from blaming it on myself, to taking it out on myself.

During those fights I withstood I would hit myself, scream and cry while telling myself it would have been better if I died. Usually my brother would be there to console me. He would put me in his truck and we would just drive, but he moved to my dad’s house in Michigan. My dad got very ill, so my brother moved there for a while to help out. His absence really affected me, especially during those loathsome times. We’ve always been extraordinarily close and not having him there really added to my depression. Not to mention, my best friends were starting to drift away from me as well. Most of my friends were the same age as me (22), so they were at the height of their party days. Having to help with the wheelchair and the occasional bathroom trip proved to be too much, and this made me feel like I wasn‚Äôt even worth being friends with anymore. I could count on one hand the amount of times I was invited out with my friends and their friends. I don’t want to make it sound like there was no effort ever made on their part, but any time we did something I was usually the one initiating it. In the beginning it was new and exciting and we were kind of having fun with it, but after a couple of years, taking me out became more of a chore than anything. And who wants to do chores while they’re out trying to have fun? So, at the time I really didn’t have anyone to talk to and it really started taking a toll on me. Horrible thoughts creeped into my mind constantly…¬†What¬†was the¬†purpose of me surviving? Why would God do this to me? What did I do so wrong in my past that I deserved this? Am I ever going to feel happiness again?¬†And most importantly… How¬†the fuck am I going to get out of here?¬†

A long-time friend of mine saw the limitations when it came to my independence. Mainly because getting out of bed was something I still couldn’t do alone. I needed someone to lift me up and sit me down. My friend’s sister is disabled as well and had an electric scooter that she wasn’t using or planning to use in the future. So, they donated it to me, and it changed my life! I could get myself on to it and just go! I would ride down the block and sit by a small pond and just be so thankful to be alone and not be afraid. I could take my dog on walks and not have to worry about him getting loose and running away, because his leash attached to the chair. This totally lifted my spirits and made me much more independent. Most importantly, I taught myself how to transfer on and off the toilet, which eliminated the need for adult diapers. How freeing is that? It doesn’t get much better than trading in Depends for cute Victoria Secret panties! This alone helped immensely with my confidence. Being able to go to the bathroom alone, shower alone and get out of the house on my own were some of the most freeing barriers I’ve broken.

Some say that before things get better, first they get worse. Whoever came up with that saying deserves a big ass fucking award, because my God is it true. One night I was tidying myself up for bed and after I was done brushing my teeth I went to roll through the doorway in my electric scooter. Just as the first set of wheels hit the threshold bump my right foot slipped off the footplate and got stuck between the door frame and the chair. Most people assume that because I’m paralyzed I don’t have any feeling, but I have complete sensation. My tibia (shin) was broken and it hurt like a bitch and a half. Luckily it was only broken ¬ĺ of the way, so no surgery was needed.¬†Are you fucking kidding me? How will I do therapy now? All the sweat, blood and tears that I shed during my recovery were all for nothing.¬†

The broken leg was followed by a very scary complication with my IVC filter. An IVC filter is a little contraption that looks like a mini head scratcher that keeps any blood clots from traveling to the lungs or heart. Here’s a picture.¬†This filter was put in when I first sustained my injury. The filter broke in several places and two pieces of the metal actually completely detached and migrated so far into my liver that they surgically cannot be removed. The first surgeon I went to told me there were a couple more pieces that could break off and migrate at any time, but she refused to take it out because it was “too risky of a surgery”. This scared the shit out of me because all I could think was what if it punctures a lung or my heart? This thing could kill me at any second!¬†Thankfully¬†I found someone who specializes in taking them out. He’s actually the only surgeon in Illinois who does this type of operation, or at least he was at the time. It was a very complicated and challenging surgery. They predicted it would take about 45 minutes, but it ended up taking over 5 hours. He showed me the filter afterwards and it literally looked like a dog had chewed it up.¬†This shit was inside me in order to PREVENT injuries?! Now I see why that other doctor was like uh-uhhh!¬†But it was out, and this was such a relief!!

Throughout the 2 weeks I spent in the hospital because of the filter I only had a few friends come to see me. Friends that I’d had for several years hadn’t even sent a text asking how I was doing. The ugly truth really showed itself then, and I realized I’m the only one who’s going to get me through this. People who I thought would never leave my side had suddenly vanished. I worked so hard to keep my friendships alive after my accident. I let a lot of things slide that I normally wouldn’t have. I let some of my best friends use me in order to better their own lives. Who was this doormat? The old me would have dropped someone so fast if they pulled this shit. I could understand how me being depressed would affect my friends. But aren’t friends supposed to make those tough times a little less terrible? Stick by your side when shit gets rough, not just leave you. At this point I hadn’t made any new good friends since being chair bound, so I think not being confident in that aspect kept me from cutting people off. For the longest time I thought nobody would want to be friends with me because I was in a wheelchair.¬†You¬†know what? I don‚Äôt need this, fuck them!¬†The friends that truly matter are still here, and that’s all I need.¬†If you’re not going to stick by my side during the bad times,¬†then¬†you’re not worth¬†the good times.

Due to my broken leg I was removed from physical therapy and told not to bear any weight (stand) for 3-4 months. Because I did not get consent to return to physical therapy from my doctor, I was put on a year-long waiting list to return. This would diminish all the improvements that I worked so hard for. The last 2 years I completely dedicated my¬†entire¬†life to recovering and within one second all of it was taken away… again. If you’ve ever heard the saying “if you don’t use it, you lose it”, well that applies to this situation perfectly. I had the use of my legs taken away from me twice now, and my optimism for the future was starting to diminish. I thought to myself..¬†What happens if I overcome this broken leg and dedicate my life to therapy again, and then something else happens? I could be going to school, living life and just moving on in general.¬†It may sound like I gave up, but really I just wanted to get on with my life. Every day for the past two years all I thought about was therapy and upcoming doctor appointments. I wanted to travel, go to school, make new friends, move out on my own. I wanted to be a normal 22-year-old, well as normal as possible. At that point I could really care less if I walked again or not, I just wanted to be happy. Making a new life for myself was my new main goal, so that’s what I did!